Go homepage(回首页) Upload pictures (上传图片) Write articles (发文字帖)
The author:(作者)delvpublished in(发表于) 2014/1/8 8:50:05 Cmdp volunteers save lives later， information was leaked， called upon to ask patients with donated
Xinhuanet, Wuhan, January 8 (reporters and and and and and and Xiong Jinchao and Feng Guodong)-"urgent request for October 10, 2013 in Wuhan for Shanghai female volunteers donated blood stem cells in patients with leukemia, Chai Mouping. Patients are now very weak and needs your help! ”
A few days ago, one of leukemia at the online micro-blogging, roll call looking for firewood bone marrow donors in Hubei Province, claimed to relapse, need donated blood stem cells save lives again.
According to the relevant provisions, hematopoietic stem cell donor and recipient information is not made public. Some netizens questioned, this form of recourse, whether to allow myself to become "forced"? How did volunteer the information leaked?
With microblogging "naming", once again seeking volunteers donate
Leukemia patients with Ms Li weibo being treated in a hospital in East China. Her family told the "China Site" reporter, Lee is 33 years old, was diagnosed with leukemia in late May of last year.
Was lucky, after Lee illness, found a suitable marrow match through the Red Cross, and in October last year received a hematopoietic stem cell transplant. But illness repeatedly, she yearned for hematopoietic stem cell transplantation donor could donate once again, allow her to end his suffering.
Help netizens controversial Twitter real name. The view was expressed that called upon to help put pressure on donors, "moral blackmail" is suspected. SINA Netizen "Shu SP": "Twitter roll call for help, was supposed to have been a voluntary thing, became threatened. ”
"The tweet will be issued later, I regretted it. My spur of the moment, may bring great stress to volunteer. For that I am sorry. "When it comes to Twitter name" Please donate ", Ms Li some regrets.
Lee family said "China Site" reporter, Lee himself is a Chinese bone marrow library volunteer, in 2004, she joined the bone marrow, "wanted to help others, didn't expect to need other people to help."
When volunteers heard the news agreed to donate
Volunteer named wood, 46 years old, from Hubei. His field work, at first about this "search" are even aware. Cmdp medical services staff of the Department of China Hubei Branch Library and Ms Li Hospital where an emergency coordination. Subsequently, the library staff to get in touch with Mr wood in bone marrow.
Last October Mr wood had a bone marrow donation. According to the requirement of at least 3 months before you do the second donation. After donation, he is busy with work, the body is still recovering.
Mr wood was informed that when Lee named second donation is required, immediately said, "as long as the medical clearance, would once again donated to save other lives. ”
Wood agreed, on January 3, bone matrix into China Hubei Branch Library collection donated lymphocytes examination before notices were issued, agreed with the Hubei prepared ahead of the donors ' medical and when the time is ripe to make donations.
Volunteers who leaked the hematopoietic stem cell information?
Friends of Li Mu law firm lawyers told reporters that principle of helpfulness is voluntary, not forced. As a rule, hematopoietic stem cell donor and recipient information is not made public.
Lee how to get patients with volunteer personal information? Who leaked the volunteer hematopoietic stem cell information? In this regard, the patient explained, is "trying to find out about" a little reluctant to talk.
Marrow libraries Library Director Liu Rui, Hubei Province of China, said that a bone marrow donation covers a wide range of institutions and links at present, due to various reasons, information gaps that may exist.
"Patients with urgency is understandable, but donate or accept donations through bone marrow. This is the fastest and the most secure way. "Liu said.
Chinese bone marrow matrix management center, donated by information isolation is the most basic requirements of both sides. Patients who need help again, may apply to the China bone marrow Bank for free.
It is understood that at present, there are no legislative provisions for bone marrow donation. Protect donate volunteer personal information and their own interests, is an international common practice. Liu Rui suggested that levels as soon as possible to improve the relevant laws and regulations system.
He said, "volunteers there was no statutory duty to rescue. Whatever ethical or regulatory level, society as a whole should be fully informed of relevant knowledge. While encouraging saving, but also fully guarantees the right to donate volunteer whether selecting Help. ”
新华网武汉1月8日电(新华社“中国网事”记者熊金超 冯国栋)“急寻2013年10月10日湖北武汉为上海白血病女患者捐献造血干细胞的志愿者柴某平先生。患者现在很虚弱，急需您帮助！”
日前，一位白血病患者在网上发微博，点名寻找湖北骨髓捐献者柴先生，称自己病情复发，需要其再次捐献造血干细胞救人。
按相关规定，造血干细胞捐献和受助方信息资料均不公开。有网民质疑，这种求助方式，是否让助人为乐变成“强迫”？志愿者信息又是怎么泄露的？
患者微博“点名”，求志愿者再次捐献
发微博的白血病患者李女士正在华东一家医院接受治疗。她的家人告诉“中国网事”记者，李女士今年33岁，去年5月底被确诊患有白血病。
幸运的是，李女士患病后，通过红十字会找到了合适骨髓配型，并于去年10月接受造血干细胞移植。但病情反复，她渴望造血干细胞移植供者能再捐献一次，让她彻底摆脱病魔。
发微博点实名求助引起网民争议。有人认为，点名求助给捐献者造成压力，有“道德要挟”之嫌。新浪微博网民“舒sp”说：“微博点名求助，把本来助人为乐的一件自愿的事情，变成了要挟。”
“发出这条微博后，我就后悔了。我的一时冲动，可能给志愿者带去很大压力。为此我很抱歉。”谈到微博点名“求捐”，李女士有些后悔。
李女士家人告诉“中国网事”记者，李女士本人也是中华骨髓库志愿者，她于2004年加入骨髓库，“本想去帮别人，没想到自己反而需要别人救助”。
志愿者得知消息后同意再捐
被点名的志愿者柴先生今年46岁，湖北人。他在外地务工，起初对网上这场“寻人”毫不知情。中华骨髓库医疗服务部工作人员向湖北分库及李女士所在医院进行了紧急协调。随后，骨髓库工作人员与柴先生取得联系。
柴先生去年10月捐献过一次骨髓。按规定至少要3个月后才能做二次捐献。捐献之后他一直忙于工作，目前身体仍在恢复中。
柴先生在得知李女士点名需要二次捐献时，当即表示，“只要体检合格，愿再次捐献救对方一命。”
经柴先生同意，1月3日，中华骨髓总库向湖北分库发出采集淋巴细胞捐献前体检通知书，同意湖北分库先行准备捐献者的体检，待时机成熟再做捐献。
谁泄漏了造血干细胞志愿者信息？
重友律师事务所律师李牧告诉记者，助人为乐的原则是自愿，不强迫。按规定，造血干细胞捐献和受助方信息资料均不公开。
患者李女士如何得到志愿者的个人信息？是谁泄露了造血干细胞志愿者信息？对此，患者方面解释说，是“努力想办法打听到的”，具体不愿多谈。
中华骨髓库湖北分库主任刘锐介绍说，一次骨髓捐献涉及多种机构和环节，目前，由于种种原因，可能存在信息漏洞。
“患者急切心理可以理解，但捐献或接受捐献须通过骨髓库。这才是最快、最有保障的方式。”刘主任说。
中华骨髓库总库管理中心表示，捐受双方信息隔离是最基本的要求。患者如需再次帮助，可向中华骨髓库提出免费申请。
据了解，目前，国内尚无骨髓捐献方面的立法条文。保护捐献志愿者个人信息和自身利益，是国际通行的做法。刘锐建议，在法律法规层面应尽快完善相关制度。
他说：“志愿者并不存在法定的救助义务。无论在道德层面还是法规层面，整个社会都应该充分了解相关知识。在鼓励救人的同时，也要充分保障捐献志愿者是否选择救助的权利。”
赞